My husband, Evan, and I were blessed by the birth of our second daughter in December of 2015.
On September 9th, 2015, when I was still pregnant, she was diagnosed with several birth defects in her heart along with inverted abdominal organs. After more testing, we discovered the defects in her heart are more rare and complex than previously expected, and would require a series of complex open heart surgeries.
The first is a large VSD, which is a Ventricle Septal Defect. This is the easiest of all the fixes she will need.
The second is a defect called TGA, or Transposed Great Arteries. The heart has two main arteries, the pulmonary artery and the aorta. The aorta is supposed to sit on the left side of the heart and the pulmonary on the right. In her heart, they are transposed, meaning they crossed and have switched sides.
The third is a DORV which stands for Double Outlet Right Ventricle. As I stated, that aorta should sit on the left side of the heart and filter into the left ventricle, while the pulmonary artery works in the right ventricle. Not only are her aorta and pulmonary artery on opposite sides, but they are both filtering into the right ventricle.
The fourth is called Atrial Situs Inversus which means the top two chambers of her heart are inverted.
The fifth is called Pulmonary Stenosis which is narrowing of the Pulmonary Artery. This caused the need for her shunt surgery at two weeks old.
She has already had one open heart surgery and will need several more.
Writing has always been a necessary part of my life. Writing is how I untangle my emotions, how I make sense of what is happening, and how I best share myself with others. We believe her story is worth sharing and will hopefully act as a testament to incredible power of The Lord.
As dedicated Christians, our family has relied on the promise of a life redeemed in Christ and the generous prayers of those around us. While we are enduring the natural fear that comes with these difficult situations, we are so thankful to know we have a God who cherishes His children. Though she will be born with a broken heart, we rejoice that her baptism at birth, through the power of Jesus’ resurrection, will mend her soul.
Welcome to her story.
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